Poor baby!!! I can't even begin to imagine!!! Does she have the feeding tube in her tummy? I have a friend who's DD has one of those...if she can learn to drink her med, she can get it out...but whatever it is is really nasty...so I don't blame her for wanting the tube!!! I cannot even begin to imagine what you go through! Thank God you don't have to work outside the home too!!! That would be awful with the night time schedule!